Yesterday our little Jaycee had to be transferred to Primary Children's hospital. I don't know what was worse, leaving IMC and their amazing team or the fact Jaycee was most likely going to Primary Children's Hospital for a possible surgery! Yes look really close she is in there!
Here is our brave baby girl all strapped in and ready for her ride. I think your mommy should of been strapped in instead, I was having a hard time seeing my baby girl being taken away from me and from a place we called Home. Thank you for everything IMC.
From the very beginning of this journey, Jack and I have said over and over that we would do ANYTHING for our baby girl, and to trust the doctors and nurses with their knowlege as to what Jaycee needs and what is best for her. I had no idea that today would be a day of practicing what we preached.
As of today we found out that Jaycee was having some swelling inside the ventricals of her brain from the minor brain bleed she had when being born. The swelling inside is caused from cerebral fluid made by our spine that is produced all the time naturally and then goes up to the brain to be absorbed. Well Jaycee's brainbleed stopped and clotted and now is starting to disengrate which is good news but is making it hard for the cerebral fluid to absorb the way it should. So in order to avoid any further complications we needed to relieve that pressure and fluid from her head. The safest and most practiced way by doctors to do that is to do a resevoir tap in her head so that doctors can draw fluid everyday and relieve that pressure until her body can naturally absorb it on it's own. Primary chiildren's is equipped to do the surgery so that is why we were sent there.
There were so many tears of so many different emotions falling from your Mommy and Daddy's eyes! We cried tears of fear, and we were scared for the next stage of this journey. We were so mad that our daughter was going through all of this and you were having to go through yet another obstacle. We were so sad that we were leaving the wonderful IMC. Mommy felt so guilty that you were born so early, and we felt so sorry for all three of us for having to experience this life of the NICU. After all of those emotions and an ocean of tears we stopped and started to analyze the last 31 days of your life. We felt that in order to get through today and tomorrow we needed to really focus on all of the positive blessings we have recieved from this experience, lean on the people we love the most for support, and most of all have faith in our Heavenly Father's plan for you and us!
When we got up to Primary children's and looked at you all cozied in and content, and not bothered in the least; your Mommy and Daddy felt more at ease. We couldn't believe how by seeing you we knew you were trying to teach us something. We felt like we needed to pull ourselves together and have strength like our daughter has had this entire experience.We needed to be your example, not have it the other way around.
Now that I am writing this on your actual surgery day I can update all the many people that love and care about all three of us. Your surgery was a success. The nurse even saved the little hair they had to cut and put it in a little jar labeled First Haircut and gave it to Mommy (I was so glad there was only a couple of pieces instead of a whole jar full). Now you are just sleeping, resting and recovering. "AND" The doctors let us know that once you are stable and there are no complications they will let you go back to our haven at IMC. So you will only be up at Primary's for a few days. This brought a HUGE releif to your Mommy and Daddy; and, we along with A LOT of other people who love and adore you, are praying our little hearts out for a speedy and complete recovery.
You currently weigh two pounds twelve ounces and are fifteen and a half inches long. You have a heart of gold, a smile so bright, a dimple ever so cute, hair ever so beautiful and a fighting personality! Mommy and Daddy love you so much!
Brandi,
ReplyDeleteIf ever you need anything please contact me. I know what you are going through. I have had 2 NICU babies. My oldest had his first of over 40 surgeries @ 7 hours old and my second had neuro surgery @ 3 months. Your little Jaycee is beautiful and you and Jack are awesome parents.
Wow, you guys are amazing! I am so glad that her surgery went well and she will be able to be back at the IMC hospital soon! Good luck with her recovery and hope it's fast!
ReplyDeleteI am so glad to here that the surgery went well. I miss little Jaycee and you two! She is lucky to have such wonderful parents. I hope to see you soon back at IMC!
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